A mum has spoken of her continuing ‘nightmare’ as she explained how her daughter has been kept alive on a hospital ventilator for nine months.
Emma Jackson, 30, has been living in hospital since last April with her daughter Tiffany Wrigley, after Tiffany was diagnosed with a rare neurological condition.
After complaining of a headache and pins and needles, the 11-year-old was left unable to move her legs and could not breathe just days later.
The former Rishton Methodist Primary pupil, who was set to start at Norden High last year, was diagnosed with Transverse Myelitis – a disorder affecting the central nervous system.
Tiffany, from Danvers Street, Rishton, is under 24-hour supervision by nurses at Royal Manchester Children’s Hospital having undergone a course of chemotherapy.
Emma said doctors originally thought Tiffany was suffering from a migraine, but one day found her lying on the bedroom floor.
She said: “A specialist came to see her and she started getting a little bit better after some treatment. We went home for three days and then she started having knee pain so we went back to the hospital.
“While she was in there she suddenly started not being able to breathe properly and she was rushed to Manchester Children’s Hospital.
“She was put on a ventilator and she has not been breathing for herself since.”
Ironically, Emma was about to start a new job as a carer for disabled children the same week Tiffany took ill.
She has not been able to work since.
Emma said: “It has been nightmare, really horrible. I have not been able to leave Tiffany at all.
“I have got another daughter Leonie who is nine so it has been very hard.
“Her friends have kept her going with calls
and texts and she was able to come home for Christmas Day which was brilliant.”
Emma paid tribute to her friends and family for being so supportive to her and partner David Wrigley.
Tiffany, who eats, sleeps and does her schooling at the hospital, is hoping to be able to go home in May or June, but she will still require round-the-clock care.
Family friends are attempting to raise £4,000 to pay for a specialist wheelchair to help her
get around when she is home. Emma said: “The wheelchair will mean more independence to Tiffany, it will help her move around with its power assisted wheels. I cannot thank them enough.”
Family friend Lyndsey Oakes has organised a fundraiser with disco, raffle and auction at Tricky’s pub in Oswaldtwistle. The event will take place on Friday, January 31 from 7.30pm till late.
Lyndsey said: “I feel strongly about this and needed to help. We are doing really well raising the money so far and I would ask people to please come along.”